Nominations for the 2025 EURORDIS Black Pearl Awards are now open, inviting the rare disease and healthcare communities to honour outstanding efforts to improve the lives of those affected by rare diseases. Each February since 2012, the award ceremony has celebrated exceptional achievements with annual ceremonies. The varied award categories recognise individuals, organisations, companies, researchers, scientists, media, and policymakers. These efforts aim to improve the lives of 30 million people in Europe and 300 million worldwide. Join in celebrating these contributions by submitting your nominations now by Friday 30 July.
Don’t miss your chance to nominate your star of the rare disease community, or enter yourself, for the 2025 EURORDIS Black Pearl Awards!
These award categories recognise the outstanding efforts of individuals, organisations, companies, researchers, scientists, media, and policy makers in bringing about change to improve the lives of the 30 million people in Europe and 300 million worldwide living with a rare disease.
Among all the nominations received, the EURORDIS Board of Directors will select the award recipients in October 2024.
A few finalists will be selected for the Social Media Award, for which the winners will be determined by a public vote. The awardees will then be presented with their awards at the official Ceremony in February 2025, to mark the occasion of Rare Disease Day.
Learn more about the award categories below and click to make your nomination in just a few minutes.
EURORDIS – Rare Diseases Europe is a unique, non-profit alliance of over 1000 rare disease patient organisations from 74 countries that work together to improve the lives of over 30 million people living with a rare disease in Europe. By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilising the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies and patient services.
